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| "Zippy" helps Alex enjoy the backyard with Spice. |
Hebrews 11:1 says "now faith is confidence in what we hope for and assurance about what we do not see.". This is a fitting theme for today.
After months of watching Alex experience significant mobility decline the past two weeks her function losses have come rather fast and unexpected.
Today we met with her metabolic team to try to understand this journey and brainstorm ways to give her the energy her body needs.
The reality is this LCHAD journey is unknown and remains a mystery. While this is hard to process it also presents an opportunity for us to watch God's hand continue to move in our miracle girl! While hard days are likely ahead and we will have the opportunity to learn how to use various aides to keep her safe and give her improved quality of life we have hope that things could improve for Alex. The extent and timing is firmly in the Lord's hands.
We are humbled by your care and support. We likely need more help than we even realize but we are reminded today that we have hope.
As you continue to pray for God's hand to work in the body He created so unique also pray through Romans 15:13 for our family that "the God of hope would fill us with all joy and peace as we trust in him. That we might overflow with hope by the power of the Holy Spirit".
Early May 2018
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